# Accessing and Understanding Data **URL:** https://rcop.michaeljfox.org/c/accessing-and-understanding-data/7.md?page=1 [Latest](https://rcop.michaeljfox.org/latest.md) · [Categories](https://rcop.michaeljfox.org/categories.md) · [Tags](https://rcop.michaeljfox.org/tags.md) **Page:** 2 --- ## [Parkinson's Insight Engine (PIE)](https://rcop.michaeljfox.org/t/parkinsons-insight-engine-pie/962)
**Author:** [@cameronreidhamilton](https://rcop.michaeljfox.org/u/cameronreidhamilton)\ **Replies:** 2\ **Last updated:** [June 10, 2025, 5:44pm UTC](https://rcop.michaeljfox.org/t/parkinsons-insight-engine-pie/962 "2025-06-10T17:44:00Z")
Hi, everyone! I wanted to summarize our progress with the Parkinson’s Insight Engine (PIE). First, I want to thank @vcatterson and @ehutchins for their excellent work on this project. Victoria’s work on concomitant medi… --- ## [Intro to ADNI and adnimerge for AD/PD Researchers](https://rcop.michaeljfox.org/t/intro-to-adni-and-adnimerge-for-ad-pd-researchers/993)
**Author:** [@hirotaka](https://rcop.michaeljfox.org/u/hirotaka)\ **Replies:** 3\ **Last updated:** [June 10, 2025, 3:18pm UTC](https://rcop.michaeljfox.org/t/intro-to-adni-and-adnimerge-for-ad-pd-researchers/993 "2025-06-10T15:18:16Z")
ADNI & adnimerge for AD/PD Researchers If you’re familiar with PPMI or other datasets hosted at LONI, you’ve likely come across the ADNI dataset as well. While ADNI is primarily designed for Alzheimer’s research, its ric… --- ## [Ancestry/Ethnicity in Tier 1 Genetic Data](https://rcop.michaeljfox.org/t/ancestry-ethnicity-in-tier-1-genetic-data/1010)
**Author:** [@abdulrehman.muhammad](https://rcop.michaeljfox.org/u/abdulrehman.muhammad)\ **Replies:** 2\ **Last updated:** [May 27, 2025, 11:54pm UTC](https://rcop.michaeljfox.org/t/ancestry-ethnicity-in-tier-1-genetic-data/1010 "2025-05-27T23:54:18Z")
Hi, I am working on GI and PD research and would like to utilize the MJFF data for 17 FIGS Priority SNPs under Tier 1 access. I want to account for ethnicity/ancestry and was confused as to the source of this ethnicity/… --- ## [Tips for Fox Insight's whole-genome genetic data](https://rcop.michaeljfox.org/t/tips-for-fox-insights-whole-genome-genetic-data/236)
**Author:** [@fbbriggs](https://rcop.michaeljfox.org/u/fbbriggs)\ **Replies:** 2\ **Last updated:** [May 16, 2025, 12:24pm UTC](https://rcop.michaeljfox.org/t/tips-for-fox-insights-whole-genome-genetic-data/236 "2025-05-16T12:24:22Z")
Fox Insight has a comprehensive single nucleotide polymorphism (SNP) genotyping. One must first register through FoxDEN (Tier 1 access) and then apply for Tier 2 access for these genetic data (see here: Genetic Data Requ… --- ## [Getting Started With PD Data Webinar](https://rcop.michaeljfox.org/t/getting-started-with-pd-data-webinar/975)
**Author:** [@malosco](https://rcop.michaeljfox.org/u/malosco)\ **Replies:** 7\ **Last updated:** [May 13, 2025, 10:54pm UTC](https://rcop.michaeljfox.org/t/getting-started-with-pd-data-webinar/975 "2025-05-13T22:54:47Z")
Are you interested in conducting research with PD data but are unsure where to start? If so, we hope that you will join us on Thursday, May 8th from 2:00-3:00pm EST for a webinar focused on wrangling PD data. This webin… --- ## [Accessing and analysing DaTscan images](https://rcop.michaeljfox.org/t/accessing-and-analysing-datscan-images/965)
**Author:** [@amygallagher](https://rcop.michaeljfox.org/u/amygallagher)\ **Replies:** 2\ **Last updated:** [April 9, 2025, 5:44am UTC](https://rcop.michaeljfox.org/t/accessing-and-analysing-datscan-images/965 "2025-04-09T05:44:22Z")
Hi all, I was thrilled to find the resource, many thanks to those who set this up. I am researching DaTscan characteristics in PARK2 and plan to include PPMI images in my dataset. I have identified and downloaded the di… --- ## [New Fox Insight Genetic Sub-study (FIGS) data documentation](https://rcop.michaeljfox.org/t/new-fox-insight-genetic-sub-study-figs-data-documentation/859)
**Author:** [@jgottesman](https://rcop.michaeljfox.org/u/jgottesman)\ **Replies:** 2\ **Last updated:** [April 3, 2025, 4:35pm UTC](https://rcop.michaeljfox.org/t/new-fox-insight-genetic-sub-study-figs-data-documentation/859 "2025-04-03T16:35:17Z")
Hi all, wanted to make folks aware of a new resource that is now available to aid those working with Fox Insight Genetic Sub-study (FIGS) data. If you visit the Fox DEN \> Resources page \[link\], we have made available ad… --- ## [Microbiome sequences from 23andMe](https://rcop.michaeljfox.org/t/microbiome-sequences-from-23andme/390)
**Author:** [@haydehpayami](https://rcop.michaeljfox.org/u/haydehpayami)\ **Replies:** 8\ **Last updated:** [April 3, 2025, 2:59am UTC](https://rcop.michaeljfox.org/t/microbiome-sequences-from-23andme/390 "2025-04-03T02:59:37Z")
Hi. two questions: What kit did you use to collect the samples, and have the sequences posted here undergone any QC? --- ## [Genetic analysis in admixed populations - Topic 4: Phasing and Imputation](https://rcop.michaeljfox.org/t/genetic-analysis-in-admixed-populations-topic-4-phasing-and-imputation/921)
**Author:** [@peixott](https://rcop.michaeljfox.org/u/peixott)\ **Replies:** 0\ **Last updated:** [March 11, 2025, 3:46am UTC](https://rcop.michaeljfox.org/t/genetic-analysis-in-admixed-populations-topic-4-phasing-and-imputation/921 "2025-03-11T03:46:11Z")
Hello everyone, Yes, I know… I’ve been away for a while, and maybe some people are thinking, “Did the memes and the Santos Dumont incident finally make people invite Thiago to leave DCOP?” To those people, I say: “I’m s… --- ## [Finding descriptions of PPMI features](https://rcop.michaeljfox.org/t/finding-descriptions-of-ppmi-features/692)
**Author:** [@jf.daneault](https://rcop.michaeljfox.org/u/jf.daneault)\ **Replies:** 5\ **Last updated:** [October 17, 2024, 4:37pm UTC](https://rcop.michaeljfox.org/t/finding-descriptions-of-ppmi-features/692 "2024-10-17T16:37:21Z")
Hi, my student and I are looking to leverage machine learning models and the PPMI dataset to examine the progression of various symptoms. As a first step, we linked each feature to its description in the data dictionary… --- ## [Additional PD cohorts to be aware of and how to access them](https://rcop.michaeljfox.org/t/additional-pd-cohorts-to-be-aware-of-and-how-to-access-them/561)
**Author:** [@danieltds](https://rcop.michaeljfox.org/u/danieltds)\ **Replies:** 1\ **Last updated:** [September 4, 2024, 8:10pm UTC](https://rcop.michaeljfox.org/t/additional-pd-cohorts-to-be-aware-of-and-how-to-access-them/561 "2024-09-04T20:10:25Z")
Most people here are likely familiar with major cohorts like the Parkinson’s Progression Markers Initiative, the Parkinson’s Disease Biomarkers Program, BioFIND, Fox Insight, the Global Parkinson’s Genetics Program, and … --- ## [SAA data in PPMI - data overview video](https://rcop.michaeljfox.org/t/saa-data-in-ppmi-data-overview-video/452)
**Author:** [@jodiefm](https://rcop.michaeljfox.org/u/jodiefm)\ **Replies:** 0\ **Last updated:** [June 12, 2024, 4:33pm UTC](https://rcop.michaeljfox.org/t/saa-data-in-ppmi-data-overview-video/452 "2024-06-12T16:33:47Z")
For anyone interested in understanding and using the Seed Amplification Assay (SAA) data in PPMI, I recently recorded a 6 minute overview video in conjunction with the MJFF data resources team. You can download it from … --- ## [Fox Insight: Survey Collection Windows](https://rcop.michaeljfox.org/t/fox-insight-survey-collection-windows/369)
**Author:** [@mattk](https://rcop.michaeljfox.org/u/mattk)\ **Replies:** 12\ **Last updated:** [April 24, 2024, 2:35pm UTC](https://rcop.michaeljfox.org/t/fox-insight-survey-collection-windows/369 "2024-04-24T14:35:58Z")
Fox Insight users, Does anyone know of any visualizations for when certain Fox Insight surveys began and ended data collection in a historical sense? This would be different from the Participant Schedule of Activities d… --- ## [A brief introduction on UK Biobank](https://rcop.michaeljfox.org/t/a-brief-introduction-on-uk-biobank/334)
**Author:** [@danieltds](https://rcop.michaeljfox.org/u/danieltds)\ **Replies:** 1\ **Last updated:** [February 13, 2024, 1:37pm UTC](https://rcop.michaeljfox.org/t/a-brief-introduction-on-uk-biobank/334 "2024-02-13T13:37:36Z")
Introduction Have you ever heard of the UK Biobank? Although I haven’t had the opportunity to access it yet - since it requires a paid subscription or access through an institution, which I have not yet requested - I mu… --- ## [Navigating PDBP studies](https://rcop.michaeljfox.org/t/navigating-pdbp-studies/321)
**Author:** [@hirotaka](https://rcop.michaeljfox.org/u/hirotaka)\ **Replies:** 3\ **Last updated:** [February 9, 2024, 7:59pm UTC](https://rcop.michaeljfox.org/t/navigating-pdbp-studies/321 "2024-02-09T19:59:27Z")
As many of you know, the Parkinson’s Disease Biomarkers Program (PDBP) is an invaluable resource, providing a wealth of open data for our field. Personally, I’ve been accessing PDBP data mainly through the AMP-PD platfor… --- ## [Availability of Environmental Data in some PD Cohorts](https://rcop.michaeljfox.org/t/availability-of-environmental-data-in-some-pd-cohorts/243)
**Author:** [@danieltds](https://rcop.michaeljfox.org/u/danieltds)\ **Replies:** 6\ **Last updated:** [January 31, 2024, 12:46am UTC](https://rcop.michaeljfox.org/t/availability-of-environmental-data-in-some-pd-cohorts/243 "2024-01-31T00:46:31Z")
Hello everyone! Today, I wish to highlight the significance of environmental data in PD research. Often, our focus is drawn towards genetic and clinical aspects, but it’s crucial to acknowledge the role that environment… --- ## [Access to SNPs data from NeuroX or Illumina in the AMP PD Platform](https://rcop.michaeljfox.org/t/access-to-snps-data-from-neurox-or-illumina-in-the-amp-pd-platform/267)
**Author:** [@danieltds](https://rcop.michaeljfox.org/u/danieltds)\ **Replies:** 4\ **Last updated:** [January 15, 2024, 4:04pm UTC](https://rcop.michaeljfox.org/t/access-to-snps-data-from-neurox-or-illumina-in-the-amp-pd-platform/267 "2024-01-15T16:04:14Z")
Hello! I was looking at data stored in BigQuery associated with AMP PD releases and I only found genomics data related to WGS, but couldn’t find specific data related to Illumina or NeuroX SNP arrays. Is this type of dat… --- ## [Advocacy on Environmental Risk Factors of PD esp in LMICs](https://rcop.michaeljfox.org/t/advocacy-on-environmental-risk-factors-of-pd-esp-in-lmics/266)
**Author:** [@Vidash](https://rcop.michaeljfox.org/u/Vidash)\ **Replies:** 3\ **Last updated:** [January 12, 2024, 6:01pm UTC](https://rcop.michaeljfox.org/t/advocacy-on-environmental-risk-factors-of-pd-esp-in-lmics/266 "2024-01-12T18:01:48Z")
The risk of developing PD as a result of exposure to pesticides or other toxic chemicals in our environment is not restricted to those with occupational exposure but is also increased for individuals living in the immedi… --- ## [Proteomics data : one general term with many meanings](https://rcop.michaeljfox.org/t/proteomics-data-one-general-term-with-many-meanings/258)
**Author:** [@vdardov](https://rcop.michaeljfox.org/u/vdardov)\ **Replies:** 0\ **Last updated:** [December 21, 2023, 8:49pm UTC](https://rcop.michaeljfox.org/t/proteomics-data-one-general-term-with-many-meanings/258 "2023-12-21T20:49:41Z")
With the most current AMP PD release that contains both targeted and untargeted proteomics data, I wanted to take a minute to explain the differences between the two and expand a bit on the types of proteomics data one … --- ## [Interpretation of a genetic variant](https://rcop.michaeljfox.org/t/interpretation-of-a-genetic-variant/253)
**Author:** [@psaffie](https://rcop.michaeljfox.org/u/psaffie)\ **Replies:** 7\ **Last updated:** [December 18, 2023, 10:22pm UTC](https://rcop.michaeljfox.org/t/interpretation-of-a-genetic-variant/253 "2023-12-18T22:22:33Z")
In this post I would like to explain the way to read a genetic laboratory report and its interpretation. For this purpose I will use an example of a commercial laboratory report: The genetic variant " c.1561G\>A (p.G… --- ## [Global Parkinson's Genetics Program (GP2)](https://rcop.michaeljfox.org/t/global-parkinsons-genetics-program-gp2/229)
**Author:** [@psaffie](https://rcop.michaeljfox.org/u/psaffie)\ **Replies:** 1\ **Last updated:** [November 17, 2023, 12:20am UTC](https://rcop.michaeljfox.org/t/global-parkinsons-genetics-program-gp2/229 "2023-11-17T00:20:39Z")
HI @DCoP\_Innovators ! Today I want to share my experience as a Global Parkinson’s Genetics Program (GP2) member. Our recent in person meeting was held in Copenhagen, and it is summarized formally and informally in this… --- ## [Digital Biomarkers of Parkinson’s Disease](https://rcop.michaeljfox.org/t/digital-biomarkers-of-parkinson-s-disease/232)
**Author:** [@Vidash](https://rcop.michaeljfox.org/u/Vidash)\ **Replies:** 0\ **Last updated:** [November 8, 2023, 9:45am UTC](https://rcop.michaeljfox.org/t/digital-biomarkers-of-parkinson-s-disease/232 "2023-11-08T09:45:09Z")
Digital Biomarkers using devices such as wearables, phones, and smartwatches are providing opportunities to monitor the disease, treatment effects, and the daily lived experience of disease. I had an interesting conver… --- ## [How to obtain transcriptomics data from the PDBP?](https://rcop.michaeljfox.org/t/how-to-obtain-transcriptomics-data-from-the-pdbp/217)
**Author:** [@danieltds](https://rcop.michaeljfox.org/u/danieltds)\ **Replies:** 2\ **Last updated:** [October 23, 2023, 9:58pm UTC](https://rcop.michaeljfox.org/t/how-to-obtain-transcriptomics-data-from-the-pdbp/217 "2023-10-23T21:58:33Z")
Hello! I aim to acquire blood transcriptomics data from the Parkinson’s Disease Biomarkers Program (PDBP) website. I possess a valid access login account, but I cannot locate where to access this specific data. For exam… --- ## [Barriers to trial participation](https://rcop.michaeljfox.org/t/barriers-to-trial-participation/204)
**Author:** [@Vidash](https://rcop.michaeljfox.org/u/Vidash)\ **Replies:** 3\ **Last updated:** [October 30, 2023, 8:59pm UTC](https://rcop.michaeljfox.org/t/barriers-to-trial-participation/204 "2023-10-30T20:59:50Z")
At the GP2 meeting, one of our interesting conversations was on overcoming barriers to Parkinson Disease trial participation. We tried to make sense of perceived barriers to trial participation to improve trial enrollmen… --- ## [Navigating the PD data landscape: online browsing tools](https://rcop.michaeljfox.org/t/navigating-the-pd-data-landscape-online-browsing-tools/225)
**Author:** [@paularp](https://rcop.michaeljfox.org/u/paularp)\ **Replies:** 1\ **Last updated:** [October 25, 2023, 6:44pm UTC](https://rcop.michaeljfox.org/t/navigating-the-pd-data-landscape-online-browsing-tools/225 "2023-10-25T18:44:04Z")
As research generates vast amounts of data, it can become overwhelming and make it challenging to know where to begin. Browsers and online platforms for exploring datasets, cohorts, and omics resources are essential rese… --- ## [UK Biobank question](https://rcop.michaeljfox.org/t/uk-biobank-question/214)
**Author:** [@gdp22](https://rcop.michaeljfox.org/u/gdp22)\ **Replies:** 2\ **Last updated:** [October 20, 2023, 1:51pm UTC](https://rcop.michaeljfox.org/t/uk-biobank-question/214 "2023-10-20T13:51:55Z")
Hi all, does anyone have experience using the UK Biobank? I am trying to figure out how many persons with PD (PwP, ICD code G20) are in the database who also have the ICD code Z45.1 Adjustment and management of infusion… --- ## [Resources for sequence variant interpretation](https://rcop.michaeljfox.org/t/resources-for-sequence-variant-interpretation/202)
**Author:** [@rooparajan](https://rcop.michaeljfox.org/u/rooparajan)\ **Replies:** 2\ **Last updated:** [October 20, 2023, 1:25pm UTC](https://rcop.michaeljfox.org/t/resources-for-sequence-variant-interpretation/202 "2023-10-20T13:25:47Z")
Hi everyone. I am looking for resources on variant interpretation for monogenic diseases, specifically approaches to resolve Variants of Undetermined Significance. This is the ACMG/AMP standards and guidelines document S… --- ## [Accessing Data: LONI vs AMP PD](https://rcop.michaeljfox.org/t/accessing-data-loni-vs-amp-pd/180)
**Author:** [@ehutchins](https://rcop.michaeljfox.org/u/ehutchins)\ **Replies:** 4\ **Last updated:** [October 5, 2023, 9:00pm UTC](https://rcop.michaeljfox.org/t/accessing-data-loni-vs-amp-pd/180 "2023-10-05T21:00:56Z")
What experiences do others have with accessing data from LONI vs AMP PD? I primarily have done analysis with the PPMI and BioFIND cohorts, which have data available both at LONI and AMP PD. The AMP PD data harmonization … --- ## [Prior experience with PDBP biological and omics data](https://rcop.michaeljfox.org/t/prior-experience-with-pdbp-biological-and-omics-data/114)
**Author:** [@danieltds](https://rcop.michaeljfox.org/u/danieltds)\ **Replies:** 6\ **Last updated:** [August 18, 2023, 5:18pm UTC](https://rcop.michaeljfox.org/t/prior-experience-with-pdbp-biological-and-omics-data/114 "2023-08-18T17:18:30Z")
Hello everybody! My research team is trying to understand the PDBP dataset and the biological and “omics” data that come with it. However, as we have never had any previous experience with this dataset, I have some quest… --- ## [An Introduction to the PPMI Dataset](https://rcop.michaeljfox.org/t/an-introduction-to-the-ppmi-dataset/147)
**Author:** [@danieltds](https://rcop.michaeljfox.org/u/danieltds)\ **Replies:** 4\ **Last updated:** [August 17, 2023, 8:37pm UTC](https://rcop.michaeljfox.org/t/an-introduction-to-the-ppmi-dataset/147 "2023-08-17T20:37:57Z")
Hello everyone! Today, I’m here to make a fairly simple post aimed at those who have little or no familiarity with one of the main open datasets about Parkinson’s disease: the Parkinson’s Progression Markers Initiative (… [Previous page](https://rcop.michaeljfox.org/c/accessing-and-understanding-data/7.md) [Next page](https://rcop.michaeljfox.org/c/accessing-and-understanding-data/7.md?page=2)