# Data Sharing and Publications **URL:** https://rcop.michaeljfox.org/c/data-sharing-and-publications/6.md [Latest](https://rcop.michaeljfox.org/latest.md) · [Categories](https://rcop.michaeljfox.org/categories.md) · [Tags](https://rcop.michaeljfox.org/tags.md) --- ## [About the Data Sharing and Publications category](https://rcop.michaeljfox.org/t/about-the-data-sharing-and-publications-category/25)
**Author:** [@system](https://rcop.michaeljfox.org/u/system)\ **Replies:** 0\ **Last updated:** [June 3, 2023, 2:02am UTC](https://rcop.michaeljfox.org/t/about-the-data-sharing-and-publications-category/25 "2023-06-03T02:02:31Z")
Category for conversations related to data releases, data sharing, and/or publications. --- ## [Member Publications, Conference Presentations, and Funding Opportunities - Q4 2026](https://rcop.michaeljfox.org/t/member-publications-conference-presentations-and-funding-opportunities-q4-2026/1720)
**Author:** [@gginnan](https://rcop.michaeljfox.org/u/gginnan)\ **Replies:** 1\ **Last updated:** [October 27, 2026, 9:24pm UTC](https://rcop.michaeljfox.org/t/member-publications-conference-presentations-and-funding-opportunities-q4-2026/1720 "2026-10-27T21:24:42Z")
Hi DCoP members! This is our quarterly topic where you all can share the work you’ve been doing, including papers or pre-prints you’ve written or been involved with, or talks you’ve given. Please use this thread to add … --- ## [Open Science Guide update: OSF phases out Projects](https://rcop.michaeljfox.org/t/open-science-guide-update-osf-phases-out-projects/1719)
**Author:** [@mattk](https://rcop.michaeljfox.org/u/mattk)\ **Replies:** 1\ **Last updated:** [October 16, 2026, 5:59pm UTC](https://rcop.michaeljfox.org/t/open-science-guide-update-osf-phases-out-projects/1719 "2026-10-16T17:59:35Z")
Hi everyone, We’ve updated the Open Science Guide for Parkinson’s Research in response to an important change at the Open Science Framework (OSF). What’s happening with OSF? OSF is phasing out its Project workflows. T… --- ## [MDS 2026 posters](https://rcop.michaeljfox.org/t/mds-2026-posters/1702)
**Author:** [@ecebayram](https://rcop.michaeljfox.org/u/ecebayram)\ **Replies:** 2\ **Last updated:** [October 14, 2026, 9:34pm UTC](https://rcop.michaeljfox.org/t/mds-2026-posters/1702 "2026-10-14T21:34:31Z")
I had a meeting at my poster presenting slot so missed out on sharing my posters on site :frowning: so i’m sharing here! a little dive into alzheimer’s pathology and lewy, and a little dive into progressive supranuclear … --- ## [Monogenic PD in Africa](https://rcop.michaeljfox.org/t/monogenic-pd-in-africa/1597)
**Author:** [@Vidash](https://rcop.michaeljfox.org/u/Vidash)\ **Replies:** 4\ **Last updated:** [July 16, 2026, 6:32pm UTC](https://rcop.michaeljfox.org/t/monogenic-pd-in-africa/1597 "2026-07-16T18:32:07Z")
98% of Sub-Saharan African Parkinsons disease cases lack an identified genetic cause creating a huge research gap. This suggests that environmental factors and the possibility of undiscovered genes and mechanisms have to… --- ## [Open Science Guide for Parkinson's Research](https://rcop.michaeljfox.org/t/open-science-guide-for-parkinsons-research/1624)
**Author:** [@mattk](https://rcop.michaeljfox.org/u/mattk)\ **Replies:** 1\ **Last updated:** [July 15, 2026, 2:02pm UTC](https://rcop.michaeljfox.org/t/open-science-guide-for-parkinsons-research/1624 "2026-07-15T14:02:47Z")
Hi everyone, Given the growth of new community members on this platform, I wanted to post again about our web book, Open Science Guide for Parkinson’s Research that emerged from the Data Modality and Methodology Task Fo… --- ## [Member Publications, Conference Presentations, and Funding Opportunities - Q3 2026](https://rcop.michaeljfox.org/t/member-publications-conference-presentations-and-funding-opportunities-q3-2026/1615)
**Author:** [@gginnan](https://rcop.michaeljfox.org/u/gginnan)\ **Replies:** 3\ **Last updated:** [July 14, 2026, 11:02pm UTC](https://rcop.michaeljfox.org/t/member-publications-conference-presentations-and-funding-opportunities-q3-2026/1615 "2026-07-14T23:02:16Z")
Hi DCoP members! This is our quarterly topic where you all can share the work you’ve been doing, including papers or pre-prints you’ve written or been involved with, or talks you’ve given. Please use this thread to add … --- ## [Highlighting a poster from WPC](https://rcop.michaeljfox.org/t/highlighting-a-poster-from-wpc/1594)
**Author:** [@psaffie](https://rcop.michaeljfox.org/u/psaffie)\ **Replies:** 2\ **Last updated:** [June 9, 2026, 9:32pm UTC](https://rcop.michaeljfox.org/t/highlighting-a-poster-from-wpc/1594 "2026-06-09T21:32:20Z")
I would like to highlight the work of a new member, @MichelleSchmidt, a medical student from Pacific Northwest University of Health Sciences, I met at WPC. Michelle presented a systematic review on subterritory-speci… --- ## [Co-pathology and treating biomarkers: true promise for the future?](https://rcop.michaeljfox.org/t/co-pathology-and-treating-biomarkers-true-promise-for-the-future/1579)
**Author:** [@vcatterson](https://rcop.michaeljfox.org/u/vcatterson)\ **Replies:** 2\ **Last updated:** [May 28, 2026, 7:52pm UTC](https://rcop.michaeljfox.org/t/co-pathology-and-treating-biomarkers-true-promise-for-the-future/1579 "2026-05-28T19:52:16Z")
Hi everyone! I was interested to read this opinion piece recently (featuring a quote from the MJFF chief scientist, too!): https://www.science.org/content/article/most-dementia-patients-have-multiple-brain-diseases-how-… --- ## [Member Publications, Conference Presentations, and Funding Opportunities - Q2 2026](https://rcop.michaeljfox.org/t/member-publications-conference-presentations-and-funding-opportunities-q2-2026/1506)
**Author:** [@gginnan](https://rcop.michaeljfox.org/u/gginnan)\ **Replies:** 2\ **Last updated:** [April 24, 2026, 5:48pm UTC](https://rcop.michaeljfox.org/t/member-publications-conference-presentations-and-funding-opportunities-q2-2026/1506 "2026-04-24T17:48:02Z")
Hi DCoP members! This is our quarterly topic where you all can share the work you’ve been doing, including papers or pre-prints you’ve written or been involved with, or talks you’ve given. Please use this thread to add … --- ## [Call for papers for neuro work from Latin America and the Caribbean!](https://rcop.michaeljfox.org/t/call-for-papers-for-neuro-work-from-latin-america-and-the-caribbean/1505)
**Author:** [@ecebayram](https://rcop.michaeljfox.org/u/ecebayram)\ **Replies:** 3\ **Last updated:** [April 15, 2026, 2:49pm UTC](https://rcop.michaeljfox.org/t/call-for-papers-for-neuro-work-from-latin-america-and-the-caribbean/1505 "2026-04-15T14:49:33Z")
Hiii everyone, sharing this call for paper from the Equity Neuroscience journal: https://www.sciencedirect.com/special-issue/332499/no-more-waiting-toward-equitable-neuroscience-in-latin-america-and-the-caribbean I kno… --- ## [Stem Cell Therapies in Parkinson’s Disease: Are We Moving Too Fast?](https://rcop.michaeljfox.org/t/stem-cell-therapies-in-parkinson-s-disease-are-we-moving-too-fast/1490)
**Author:** [@psaffie](https://rcop.michaeljfox.org/u/psaffie)\ **Replies:** 2\ **Last updated:** [April 15, 2026, 6:29am UTC](https://rcop.michaeljfox.org/t/stem-cell-therapies-in-parkinson-s-disease-are-we-moving-too-fast/1490 "2026-04-15T06:29:06Z")
This week, two of my patients asked me about stem-cell therapy for Parkinson’s disease after hearing that Japan had approved it as a promising treatment. That worried me a lot. My concern is that patients may develop ex… --- ## [Women with Parkinson's disease](https://rcop.michaeljfox.org/t/women-with-parkinsons-disease/1466)
**Author:** [@ecebayram](https://rcop.michaeljfox.org/u/ecebayram)\ **Replies:** 7\ **Last updated:** [March 19, 2026, 12:35pm UTC](https://rcop.michaeljfox.org/t/women-with-parkinsons-disease/1466 "2026-03-19T12:35:11Z")
Since it’s International Women’s History Month (woohooo!) I wanted to start a thread on some papers highlighting the experience of women with Parkinson’s disease. Some of my fave papers for this topic from the recent lit… --- ## [Early Parkinson’s Revealed by Unlocking Longitudinal Omics at Population Scale](https://rcop.michaeljfox.org/t/early-parkinson-s-revealed-by-unlocking-longitudinal-omics-at-population-scale/1475)
**Author:** [@jodyhesch](https://rcop.michaeljfox.org/u/jodyhesch)\ **Replies:** 2\ **Last updated:** [March 18, 2026, 5:15pm UTC](https://rcop.michaeljfox.org/t/early-parkinson-s-revealed-by-unlocking-longitudinal-omics-at-population-scale/1475 "2026-03-18T17:15:20Z")
The folks at MJFF-funded Alkahest who I was fortunate to support last year just released a preprint for their work over the past few years titled, “Early Parkinson’s Revealed by Unlocking Longitudinal Omics at Population… --- ## [Silver linings of diseases?](https://rcop.michaeljfox.org/t/silver-linings-of-diseases/1456)
**Author:** [@ecebayram](https://rcop.michaeljfox.org/u/ecebayram)\ **Replies:** 3\ **Last updated:** [March 4, 2026, 6:52pm UTC](https://rcop.michaeljfox.org/t/silver-linings-of-diseases/1456 "2026-03-04T18:52:29Z")
I came across this paper and thought it was so interesting. Even though it’s not necessarily on Parkinson’s disease, I wanted to share with everyone gruber-et-al-2025-silver-linings-in-psychological-disorders-an-agenda-… --- ## [Surgicogenomics in PD](https://rcop.michaeljfox.org/t/surgicogenomics-in-pd/1447)
**Author:** [@psaffie](https://rcop.michaeljfox.org/u/psaffie)\ **Replies:** 3\ **Last updated:** [February 26, 2026, 6:03am UTC](https://rcop.michaeljfox.org/t/surgicogenomics-in-pd/1447 "2026-02-26T06:03:38Z")
Hi all, I’m looking for good datasets, analyses, or papers on surgicogenomics in PD—especially how variants like GBA1 (e.g., p.L444P) may influence DBS outcomes (motor response, cognition, complications) or target selec… --- ## [AMP PD neuron-derived extracellular vesicle (EV) RNA-Seq Data Release](https://rcop.michaeljfox.org/t/amp-pd-neuron-derived-extracellular-vesicle-ev-rna-seq-data-release/1430)
**Author:** [@ehutchins](https://rcop.michaeljfox.org/u/ehutchins)\ **Replies:** 2\ **Last updated:** [February 18, 2026, 5:29pm UTC](https://rcop.michaeljfox.org/t/amp-pd-neuron-derived-extracellular-vesicle-ev-rna-seq-data-release/1430 "2026-02-18T17:29:56Z")
I wanted to highlight a new data type released with AMP PD in December 2025: RNA-Seq of neuron-derived extracellular vesicles (NDEVs). Extracellular vesicles are released from cells and carry cargo (DNA, RNA, proteins, … --- ## [Tips for writing scientific manuscripts](https://rcop.michaeljfox.org/t/tips-for-writing-scientific-manuscripts/1422)
**Author:** [@ecebayram](https://rcop.michaeljfox.org/u/ecebayram)\ **Replies:** 3\ **Last updated:** [February 11, 2026, 6:44am UTC](https://rcop.michaeljfox.org/t/tips-for-writing-scientific-manuscripts/1422 "2026-02-11T06:44:15Z")
I just saw this on twitter for writing manuscripts and thought it was a neat visual (i’m also sharing the link to the post directly to credit the person): https://x.com/rabataller/status/2018300965871350033 I definit… --- ## [Parkinson's Symptom Wheel: request for input](https://rcop.michaeljfox.org/t/parkinsons-symptom-wheel-request-for-input/1389)
**Author:** [@vcatterson](https://rcop.michaeljfox.org/u/vcatterson)\ **Replies:** 5\ **Last updated:** [January 19, 2026, 9:33pm UTC](https://rcop.michaeljfox.org/t/parkinsons-symptom-wheel-request-for-input/1389 "2026-01-19T21:33:19Z")
As part of the Visual Resources Task Force, a small group of us have been working on a Parkinson’s Symptom Wheel. We’ve focused in on three different concepts, and today we’re asking for your input! Which do you like bes… --- ## [Sharing big size data (in a safe way)](https://rcop.michaeljfox.org/t/sharing-big-size-data-in-a-safe-way/121)
**Author:** [@paularp](https://rcop.michaeljfox.org/u/paularp)\ **Replies:** 5\ **Last updated:** [January 9, 2026, 4:56am UTC](https://rcop.michaeljfox.org/t/sharing-big-size-data-in-a-safe-way/121 "2026-01-09T04:56:33Z")
Hi everyone! I am looking for all kind of suggestions for sharing raw genetic data from one institution to another, considering DUAs are in order but the rest is a grey area! There are not specific rules on the how to,… --- ## [Member Publications, Conference Presentations, and Funding Opportunities - Q1 2026](https://rcop.michaeljfox.org/t/member-publications-conference-presentations-and-funding-opportunities-q1-2026/1390)
**Author:** [@gginnan](https://rcop.michaeljfox.org/u/gginnan)\ **Replies:** 0\ **Last updated:** [January 7, 2026, 10:23pm UTC](https://rcop.michaeljfox.org/t/member-publications-conference-presentations-and-funding-opportunities-q1-2026/1390 "2026-01-07T22:23:20Z")
Hello, DCoP members, I hope your 2026 is off to a good start! This is our quarterly topic where you all can share the work you’ve been doing, including papers or pre-prints you’ve written or been involved with, or talks … --- ## [A small Christmas genetics challenge for the community](https://rcop.michaeljfox.org/t/a-small-christmas-genetics-challenge-for-the-community/1363)
**Author:** [@psaffie](https://rcop.michaeljfox.org/u/psaffie)\ **Replies:** 1\ **Last updated:** [December 17, 2025, 2:16am UTC](https://rcop.michaeljfox.org/t/a-small-christmas-genetics-challenge-for-the-community/1363 "2025-12-17T02:16:50Z")
Hi everyone! I’m currently working on a study exploring the genetic architecture of Parkinson’s disease, and I wanted to share a small thought exercise with the community. Looking only at this donut plot showing the di… --- ## [Member Publications, Conference Presentations, and Funding Opportunities - Q4 2025](https://rcop.michaeljfox.org/t/member-publications-conference-presentations-and-funding-opportunities-q4-2025/1278)
**Author:** [@gginnan](https://rcop.michaeljfox.org/u/gginnan)\ **Replies:** 10\ **Last updated:** [December 15, 2025, 10:58pm UTC](https://rcop.michaeljfox.org/t/member-publications-conference-presentations-and-funding-opportunities-q4-2025/1278 "2025-12-15T22:58:01Z")
Hello, DCoP members! This is our quarterly topic where you all can share the work you’ve been doing, including papers or pre-prints you’ve written or been involved with, or talks you’ve given. Please use this thread to a… --- ## [Disseminating findings](https://rcop.michaeljfox.org/t/disseminating-findings/1353)
**Author:** [@ecebayram](https://rcop.michaeljfox.org/u/ecebayram)\ **Replies:** 5\ **Last updated:** [December 12, 2025, 7:56pm UTC](https://rcop.michaeljfox.org/t/disseminating-findings/1353 "2025-12-12T19:56:23Z")
since i became faculty (1,5 years ago, i’m a newbie), i’ve had the wish to be more transparent with my research output and share findings with community. the scientific talks making their way to youtube, papers with open… --- ## [Newly Released PPMI Proteomics Curated Datasets](https://rcop.michaeljfox.org/t/newly-released-ppmi-proteomics-curated-datasets/455)
**Author:** [@mcbrumm](https://rcop.michaeljfox.org/u/mcbrumm)\ **Replies:** 6\ **Last updated:** [December 9, 2025, 9:32pm UTC](https://rcop.michaeljfox.org/t/newly-released-ppmi-proteomics-curated-datasets/455 "2025-12-09T21:32:20Z")
The Parkinson’s Progression Markers Initiative (PPMI) recently released a new curated proteomics data cut. It’s important to note that the new curated proteomics data cut can be merged with other PPMI variables using th… --- ## [When the Journal Club got creative (literally)](https://rcop.michaeljfox.org/t/when-the-journal-club-got-creative-literally/1303)
**Author:** [@paularp](https://rcop.michaeljfox.org/u/paularp)\ **Replies:** 4\ **Last updated:** [November 1, 2025, 12:55am UTC](https://rcop.michaeljfox.org/t/when-the-journal-club-got-creative-literally/1303 "2025-11-01T00:55:34Z")
I didn’t know what to present at my lab’s Journal Club… and I’m making it everyone’s problem. Like in many labs, each member has to present one paper per semester. But in ours, that’s complicated: we’re a mix of clinical… --- ## [MDS International Congress Controversies](https://rcop.michaeljfox.org/t/mds-international-congress-controversies/1287)
**Author:** [@psaffie](https://rcop.michaeljfox.org/u/psaffie)\ **Replies:** 3\ **Last updated:** [October 21, 2025, 10:01am UTC](https://rcop.michaeljfox.org/t/mds-international-congress-controversies/1287 "2025-10-21T10:01:05Z")
Good day everyone, I wanted to bring to this group a question that came up during the last day of the MDS Congress in Honolulu: Should All Individual Research Results be Shared with Participants? For me, the answer… --- ## [Graphic design is (not) my passion: a short guide to make a good scientific figure](https://rcop.michaeljfox.org/t/graphic-design-is-not-my-passion-a-short-guide-to-make-a-good-scientific-figure/419)
**Author:** [@paularp](https://rcop.michaeljfox.org/u/paularp)\ **Replies:** 7\ **Last updated:** [October 5, 2025, 1:02am UTC](https://rcop.michaeljfox.org/t/graphic-design-is-not-my-passion-a-short-guide-to-make-a-good-scientific-figure/419 "2025-10-05T01:02:36Z")
Creating scientific figures is essential for effectively communicating scientific concepts and research findings. However, it can be especially challenging, as it involves an inherently creative and abstract process. He… --- ## [NEW Return of Genetic Results course from GP2 and ASAP!](https://rcop.michaeljfox.org/t/new-return-of-genetic-results-course-from-gp2-and-asap/1275)
**Author:** [@mchaparro](https://rcop.michaeljfox.org/u/mchaparro)\ **Replies:** 2\ **Last updated:** [October 2, 2025, 4:56pm UTC](https://rcop.michaeljfox.org/t/new-return-of-genetic-results-course-from-gp2-and-asap/1275 "2025-10-02T16:56:55Z")
If you’re interested in learning more about the process of returning genetic results to people living with Parkinson’s disease, understanding the key differences between clinical and research genetic testing, or explorin… --- ## [Member Publications, Conference Presentations, and Funding Opportunities - Q3 2025](https://rcop.michaeljfox.org/t/member-publications-conference-presentations-and-funding-opportunities-q3-2025/1089)
**Author:** [@gginnan](https://rcop.michaeljfox.org/u/gginnan)\ **Replies:** 10\ **Last updated:** [September 26, 2025, 6:53pm UTC](https://rcop.michaeljfox.org/t/member-publications-conference-presentations-and-funding-opportunities-q3-2025/1089 "2025-09-26T18:53:52Z")
Hello, DCoP members! This is our quarterly topic where you all can share the work you’ve been doing, including papers or pre-prints you’ve written or been involved with, or talks you’ve given. Please use this thread to a… [Next page](https://rcop.michaeljfox.org/c/data-sharing-and-publications/6.md?page=1)