Hello, I’m Jodie Forbes, based in London, UK, but unaffiliated.

I’m a computer science/data person by background but got diagnosed with PD seven years ago. Two years ago I semi-retired to see how I could contribute to PD research. I did an MSc in Neuroscience at King’s College London and now work freelance for organisations like MJFF in the US and Cure Parkinson’s in the UK mostly doing data science type work, though I’m also a patient representative on various initiatives like ACT-PD and CPP’s endpoints. I also do a YouTube channel for people affected by PD.

I’m pretty familiar with PPMI data (I wrote the PPMI data user guide for MJFF) so might be able to help with questions on that.