Let’s share the name and link to datasets
PPMI, BioFIND, ADNI → IDA
FoxDEN
Are there dbGaP or GSEA resources?
This is Parkinson’s Disease Biomarker’s Program- Link
AMP-PD
Whole genome Whole Genome Data | AMP-PD
rna-SEQ Transcriptomics Data | AMP-PD
Fox Insight
LCC (LRRK2 Cohort Consortium)
Levadopa Wearables data
MJFF also has pages that are updated to include our available Tools, Biospecimen, and Available Data, would it be helpful to have a pinned post with those or not so much? @hirotaka @fbbriggs @paularp @danieltds what do you think?
I think it would be super cool. Down to do it, DM me if someone else wants to contribute!
now that I’ve said that… do we think tools and biospecimen both fall under ‘accessing data’?
@jgottesman
Having a pinned or summarized page for accessible data source, it would be super useful. Thank you for taking a lead @paularp !
In my mind, tools and biospecimen are slightly different from "accessing data’ although it is great to know they are available. Maybe “Resources”? Welcome to the others’ opinion!
I agree with @hirotaka here, is both Resources and Accessing data
I like this suggestion. Were you thinking this would be another category? Go into the current “misc” one? A button up top where the directory is? Something else?
I just sent Maya a suggestion that I’m going to make public, in addition to what you were discussing here. I think this topic (Accessing Data) should be renamed. I think that “Accessing and Understanding Data and Resources” would fit this topic.
I think that we have to include “Understanding” here because I see some logic in people having questions on how to understand the datasets also (which isn’t a “Analyze and Reusing Dataset” topic). Additionnally, in order to dismiss questions herein said, I think adding “Resources” here also contributes. I think that creating a separte topic for Resources is not a good idea.
Good suggestion, @danieltds ! Hey, would you like to help make the list from this post and other sources? I saw in other post you are experienced in some good datasets!
Hi @paularp @danieltds and everyone! I like the suggestion of changing the Category name to “Accessing and Understanding Data and Resources." Do others agree that this would help clarify the purpose of the Category?
Agree with this. Thank you!
Yes, let’s make the change @maya.sanghvi and add the available dataset list generation + pinning of that resource to our action list
Great! @DCoP_Innovators note the change in the Accessing Data Category name to Accessing and Understanding Data. Let us know if this helps use of the Category or if an additional Category is needed.