Hi DCoP members!
This is our quarterly topic where you all can share the work you’ve been doing, including papers or pre-prints you’ve written or been involved with, or talks you’ve given. Please use this thread to add links to any relevant articles that you have written recently, or to link to slides and/or recordings of your conference presentations.
Additionally, we encourage you to share what funding you are applying for and/or what grant programs you are aware of which will be opening/closing soon.
We love hearing what you’re working on, and sharing your projects can be a great way to make connections or foster new collaborations.
Really looking forward to seeing your work and hearing your input!
I’d love to share one of the projects I had the opportunity to collaborate on recently:
Development and Psychometric Analysis of an Instrument to Assess Social Stigma Associated with Parkinson’s Disease.
This project is particularly meaningful to me because the scale was fully developed by one of the undergraduate students I had the privilege of mentoring during her final undergraduate year. Watching the project evolve from an initial idea into a validated instrument—and now a published paper—has been incredibly rewarding. 
I believe one of the most innovative aspects of this work is that it focuses on measuring stigma from the perspective of the general population toward people living with Parkinson’s disease, rather than exclusively assessing stigma as experienced by patients themselves. The resulting Parkinson’s Disease Stigma Perception (PDSP) scale provides a structured way to quantify stereotypes, prejudice, discrimination, and social avoidance directed toward people with PD.
I also think this opens several exciting avenues for future research. For example, it would be interesting to investigate how stigma expressed by members of the broader social environment—such as acquaintances, coworkers, or the general public, rather than close family members or caregivers—may influence quality of life, social participation, healthcare experiences, and other patient-centered outcomes for people living with Parkinson’s disease.
I’d be happy to hear your thoughts or discuss potential applications of this instrument in other populations or settings!
i’m heading to Alzheimer’s Association International Conference in London tomorrow! https://aaic.alz.org/
Don’t be fooled by the name, we have our Lewy Body Dementias Professional Interest Area there and also get Parkinson’s talks/research presented too. I have 4 posters with one of them that I’ll also give a talk on, and I’m looking forward to hearing about all the other cognition in Parkinson’s goodies too! If any of you are going, you can find me & our Lewy body crew at any Lewy/Parkinson/synuclein session and we’ll have a nice biomarkers discussion at the PIA Day on Saturday as well 
I’m sharing the posters & talk from AAIC if anyone’s interested 
so far it’s been a great conference and i’m really excited that they have been including more and more lewy/parkinson content over the years. it’s still not a ton, but gotta start somewhere!
aaic2026 bayram frs.zip (12.5 MB)
