I had the privilege of attending the World Parkinson’s Congress in Phoenix, Arizona.The World Parkinson’s Congress is structured differently. Patients and families sit alongside neurologists. Caregivers share panels with researchers. Every voice is given equal weight.
This structure changes everything. It reminds us why we do this work is for the person behind the diagnosis.
Connecting with colleagues from across the world who are fighting the same fight, facing the same challenges, and refusing to give up.. The challenges my country faces such as late diagnosis, drug shortages, limited specialists are shared by many countries.
Patients must be at the centre of our interventions. This congress models what care should always look like: listening to those we serve.
@ehutchins took us to the Desert Botanical Garden which was a major highlight for me. It was fun and so peaceful and @psaffie and I thoroughly enjoyed it
To everyone I met in Phoenix: thank you for the conversations, the laughter, and the shared purpose.
Have you ever attended a conference where patients and clinicians shared the same stage? What did it teach you?
