Hello! I’m not sure if this falls within the scope of this initiative (which I believe to be very good and something I might be able to contribute to), but does your idea also involve producing content that details the types of data available in these databases? Something to help people understand what’s in them even before learning how to access them?
This was the main idea I had in mind when considering writing an article highlighting datasets in PD. In this article, I envision writting a summary guide based on a table containing information such as: the institution that created or maintains the dataset, the year data collection started, the number of PD patients, the number of controls, the number of prodromics, years of longitudinal follow-up, and types of data available (clinical - motor, quality of life, sleep, cognition, autonomic, etc., genomics, transcriptomics, proteomics, lipidomics, magnetic resonance imaging, DatSCAN, serum biomarkers, urinary biomarkers, etc.).
Would this be within the scope of this Task Force? Or would it be a topic for a separate Task Force?
Congratulations on the initiative!