Hi everyone! Below is the content of the November Data Community Newsletter we sent out via email on November 1. Let us know if you didn’t receive it, or if you have topics you’d like to see in future newsletters!
November 2024 Data Community Newsletter
Community Programming & Feedback
- First community AMA
- This month we launched our first AMA (Ask Me Anything) with Dr. Michael Alosco (Associate Professor of Neurology at Boston University) answering questions about the application of neuropsychology to answer questions surrounding cognitive decline in the setting of neurodegenerative diseases. Thank you to those who submitted questions, and a big thank you to @malosco for providing such thoughtful answers! Check out the conversation on the AMA thread.
- Feedback survey
- We are interested in learning more about your experiences to date and would love to hear from you! This survey should take no more than 5 minutes to complete and your answers will enable us to improve member experiences.
Resources & Ongoing Conversations
- @Iman asked about matching MRI sessions in PPMI, which @AmgadDroby was able to answer.
- @marekpiatek shared a perspective about prions in Parkinson’s Disease.
- @jf.daneault and @danieltds discussed difficulties in finding descriptions of certain PPMI features, which @gginnan was able to help with.
- @psaffie discussed the need for harmonization and cohesion in PD research.
Task Forces Updates
The four MJFF task forces are continuing their work to produce programming and resources for the Parkinson’s disease research community.
Check out the links below to learn more them:
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Visual Resource Generation Task Force
- @vdardov and the task force compiled a list of existing visual resources in the PD data ecosystem.
- @vdardov is looking for community members who are interested in sharing their experience with the community as part of a welcome video the task force is creating for future new members.
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Mentorship and Training Task Force
- @fbbriggs posted about new platform features that will support connecting mentors and mentees within the community.
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Data Modalities and Methodologies Task Force
- The Data Modalities and Methodologies Task Force held their monthly meeting, during which specific projects were further elaborated and assigned to project leaders. Check out the task force updates from co-lead @hirotaka.
Want to get involved? If you are interested in joining, or want to provide feedback for any of the task forces, please post in the relevant thread(s) linked above!
Do you have an idea for a new task force? We are continually trying to grow and adapt our community to serve member needs. If you have suggestions for new task forces, we would love to hear from you. Email us at researchcommunity@michaeljfox.org.
Welcome New Members!
In the last month we welcomed several new members from a range of labs and disciplines. We encourage you to reach out to our new members and extend a warm welcome to the community! Some of our new members include:
- @glatard (Scientific Director, Krembil Centre for Neuroinformatics)
- @matarazzo (Neurologist, Pacific Parkinson’s Research Centre at the University of British Columbia)
- @alberto.imarisio (Neurologist, University of Pavia)
- @Iman (Associate Professor of Radiology, Harvard Medical School)
That’s all for now, hope to see you on the forum or at an upcoming task force meeting! As always, please don’t hesitate to reach out with any questions: researchcommunity@michaeljfox.org.